Heartbroken parents unable to cuddle their three-week-old son because his skin will fall off

 A baby boy was born with a rare incurable disease that means a cuddle from his parents could cause his skin to fall off. 

Kaheel Clark-Smith was diagnosed with the condition after being born with small blisters on his arms.
But now at three-weeks-old, the poor tot has lost 60% of his skin - and is so fragile, a small touch could peel his skin away.

And his distraught parents Kadyem, 22, and Kyera, 20, can’t even hold their little boy, who suffers from Epidermolyosis Bullosa (EB), for comfort.
EB is a rare genetic disorder that causes the skin to blister and burst, leaving raw sores that are susceptible to infections.

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The family are fundraising money to have him flown to a specialist EB centre on the other side of the country.
Kahleel's aunt, Brandi Smith, said: "This is their first child and they are so overwhelmed and broken.
"We found out the day he was born and didn't know anything about it. We had to do all the research at home.

"We found out this was the 'worst disease you've never heard of' and we were so heartbroken.
"Even a cuddle or a kiss can cause his skin to blister."
Kahleel was diagnosed the day he was born on December 28, but at first doctors thought it was a mild case and sent him home.

Brandi said: "The doctors gave us false hope because he was eating and all his vital signs were fine.
"Then he had a bad breakout and he was admitted to NICU on Jan 4th.

"We just got back the results from the biopsies and have been told it's the worst type of EB."
Little Kahleel took a turn for the worst last week and developed a staph infection that he currently recovering from.
The new family have been unable to leave the hospital in Seattle, Washington for nearly two weeks.
Brandi added: "The hospital had never seen a case like it and there was a lack of understand on what to do and it seems to have gotten worse.